Wow Van, that is crazy to meet up like this, thank you for your contributions and sacrifices. You're work benefits many who are suffering terribly.
Are you aware of any progress or new ways treat cases like mine? When originally tested I was positive for all 13 lyme titers plus bartonella bacilliformis. I'd love any advice from an insider on the front lines. I try to read papers and research as it comes out but it can be overwhelming. My mind and memory in particular have been affected. I really expected to be well by now.
What in your opinion is the reason the CDC and medical community at large has seemingly turned it's back on those of us who are chronically Ill? I've heard all sorts of theories, Plum island link, part two of the Tuskegee experiment etc but I have a hard time believing any of them. I would love to know what you think. There are so many people suffering from chronic lyme that can't find or get help. The doctors who do treat them have 6+ month waits and cost thousands of dollars. I talk to others on the net who are way worse than I am so I try not complain because I know it could have been much worse. Some have been sick for 20+ years. Some lost their spouses, jobs, homes, mobility, control of bodily function, sanity, everything. I have been very fortunate, my wife has been amazing through all of this. My finances took a major hit but i still have what's important and I have more days on my feet than I did this time last year so that's progress I guess. Spent the first 6 weeks of this year in bed looking at the ceiling but bouncing back somewhat now. The insane joint pain is the worst for me and sometimes the uncontrollable jerking and twitching can keep me awake for days. I've been throwing everything at it that I can, bee venom, antibiotics, herbals, and supplements. I'm so desperate I would try just about anything.
Again Van I mean it, thank you for both your contributions and sacrifices.